Make your voice heard as a carer – complete the UK State of Caring survey

Carers UK has launched this year’s State of Caring survey.
The annual State of Caring survey is the most extensive survey into unpaid carers’ experiences in the UK. It is used as a vital source of evidence not only by Carers UK, but by many other organisations including Government, local authorities, health and social care services, charities and carers groups.
With new proposals and policy changes being announced by the UK Government, it is more important than ever that carers have their say.
Please fill in survey by 10 August 2025. Results will be published later in the year.
What is the State of Caring survey?
The annual State of Caring survey is the most extensive survey into unpaid carers’ experiences in the UK. It is used as a valuable source of evidence not only by Carers UK, but by many other organisations such as central government, local authorities, health and social care services, charities and carers’ groups.
Carers UK is a membership organisation, and cannot campaign for change without carers’ help. With new proposals and policy changes being announced by the UK Government, it is more important than ever that you have your say.
How can the survey help?
Last year Carers UK was able to use carers’ responses to the survey to:
- successfully campaign for an increase to the earnings limit on Carer’s Allowance
- respond to the independent review of Carer’s Allowance overpayments
- campaign for paid carer’s leave
- publish a new report calling for changes to older carers’ benefits
- respond to the consultation on the NHS 10-Year Plan
- respond to the UK Parliament Select Committee report on the cost of inaction on social care.
The survey may take around 30 minutes to complete as it covers several areas. You don’t have to answer all the questions, and if you don’t finish, the answers you have given will be saved. Responses are anonymous unless you give specific permission.
Please note that this survey is only for unpaid carers (or former unpaid carers) who are looking after a disabled, older or seriously ill relative or friend.
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